Warning: Somewhat explicit content. Don’t read if you don’t want to know too much or face details (I wish I could heed this warning!)…
Oh. My. Gosh. I never knew showering (alone) could be so tiring! Late yesterday I had the fourth and final drain removed. I was so happy because in so many ways it signals freedom: no more required bed rest, a decrease in medication, I can begin raising my arms and doing the beginner arm exercises, and, most important, I only had to wait another day to shower – no more sponge baths!!!
After spending the morning visiting with Tina (and snacking on her incredible avocado dip), I took a deep breath and headed for the bathroom. And then I froze. As much as I was dying to get completely clean, it suddenly occurred to me that in order to do so, I would need to get naked. And then I might see.
This might surprise some, but in a way I am still in denial. I have not looked at it yet. I am pretending they are both still there. Every time the doctors checked it in the hospital, I didn’t look. Of course, I didn’t (always) clamp my eyes closed or deliberately look away, either, since I didn’t want them to notice that I was avoiding it and tell me – as the doctor in a book I read did – that I had to look and face it before leaving the hospital. And each time I’ve been back at the hospital, for the drain removals and dressing changes, I’ve also averted my eyes. And otherwise, including during my baths, I had my surgical bra with the dressings on, since I couldn’t get the area wet yet. But now I’ve been given the all clear.
I did everything I could think of in the bathroom, like brushing my teeth and weighing myself (and texting Tara to ask how much she thought my boobs weighed to see if maybe I really have lost weight, even if you don’t factor cutting them off – which made me feel a bit better) before taking a deep breath and getting undressed.
Yes, other than a brief accidental glimpse, I was able to avoid seeing my chest. I guess it’s somewhat easier when there’s basically nothing there sticking out. But you can also do a lot with your eyes closed. Of course, when you’re trying to get thoroughly clean, you can’t avoid some touch, and that was difficult enough (mainly feels like a mound of muscle on the outside, while I still feel so tight and achy, like an elephant stepped on my chest and caved it in, on the inside).
But boy, I never thought I could get so tired just washing my hair! I can’t lift my arms very high, so I alternated bending my head down (eyes closed of course) and bending it to each side and just using that arm. I was completely wiped after – and I didn’t even attempt anything as complicated as shaving!
I needed a nap immediately, I could barely stay on my feet. As I drifted off, I thought how I guess the next time someone in a review or interview asks if I have something I have to work on, I guess I could add ‘being in denial’ to the list. And I will work on it – just not yet…
And then I contemplated whether to share something this intimate or not – and obviously decided yes. Some may wonder why, so I’ll tell you: because as much as I loved the book I recently read about a woman’s similar experience – and the movie version that I just watched the other night online – I was really surprised at how little time was spent, especially in the movie, on this part – the recovery, pre-additional treatment. It feels so long, painful and tiring, and each day is something new. So I thought since many others have not gone into it, I would…
Wow – I am so sorry you are having to go through this – thank you for helping us understand what you are going through!
I think writing about it will help you and knowing that we are out here listening and praying for you. I still worry that my mom is self conscious. No reconstruction there so she is using a prosthesus. I have never looked directly, and maintain my own denial about my mother’s mortality. See…I am in denial…and it’s not even me. Congrats on your first shower, and hope you start sleeping more soon.
Denial or “de Nile” is not just a place in Egypt but sometimes a wonderful state of mind to be in, when your ready to leave you’ll find the strength. You can go back and visit but your strong enough that one day you’ll leave but take your time there now there is no rush to leave. As Vicky said its a coping mechanism and it’s there to protect you right now. Heck I still visit every now and again, but my visits are getting shorter and further apart.
As for the shower, try putting a chair in the shower to sit on. It should help conserve some energy.
I love the part about the text to Tara, that’s something I would do too. If you really want to get a true weight I would wait a couple more weeks until your body lets go of all the extra fluid they pump you with during and after surgery.
Honey, you are so very brave going through all of this. Denial is a coping mechanism, you need to find your way to deal with all this and no one can tell you your way is wrong. Yes I went though cancer, but it was completely different. I never had time to think about it before hand or have options or decisions. It was all made for me. You are so incredibly strong and I’m glad to call you friend.
Now, I have a shower tip for energy wise on your next shower trip. I know this is going to sound odd. But instead of standing in the shower, sit in the tub. Still let the water run as you normally would, just shower sitting down. When I was still re-gaining my strength, that’s what I did. It still tired me out, but not as much as standing in the shower. It’s definitely odd and you have to pre-adjust the shower head, but until your energy is at a better level it’s a good way to get clean.
Big hugs to you girl!
Please continue to be brave and post every step of your story. You remain an inspiration. God bless. Susan x