Feeds:
Posts
Comments

Archive for the ‘Fundraising’ Category

Those of you who have been following this blog for a while will remember many mentions of Mirany, my dear friends Sarah and Scott’s sweet little girl who was diagnosed with neuroblastoma last winter when she wasn’t even a year old. I will never forget the moment I found out – where I was, what time it was, how I felt – everything froze in horror, fear, disbelief and sadness. Then, after months of treatment, Mirany had surgery and was released from the hospital on the same day I was diagnosed in March. Since then, it has been eight long months of ups and downs for both of us.
Today we received the most wonderful news. Since so many of you ask me how she is doing, here’s the note Sarah, Scott, Mirany, and TommyBoy (their dog) sent:
“Dear Friends and Family,
Today Mirany’s oncologist shared incredible news with us: For the first time in her life, she is cancer free. Both her MIBG scan and urine analysis were 100% negative for neuroblastoma, and her MRI reveals only scar tissue. In addition, the nodule in her lung that caused much anxiety and distress is gone.
It is, in some ways, as difficult to believe this wonderful news as it was to accept the initial diagnosis. It seems impossible that this ordeal could be over. As painful as this journey was, we were always aware of the blessings we received upon the way, and our hearts ached (and will ache) for all those still fighting. The past 335 days have been a lesson in humanity and compassion; we can only hope to “pay it forward” and be as good to others as you all have been to us. Let’s keep looking out for each other.
With love,
Sarah, Scott, Mirany, and TommyBoy”
I have learned so much from all of them this year. About love, strength, perseverance, sacrifice, friendship, faith – so much. Even about cancer, doctors, hospitals and coping. And innocence: Mirany is simply precious and innocent. I am so thankful she will not remember this battle she’s just fought, and will now be able to simply be the normal little girl she deserves to be.
Dreams do come true – thanks to fabulous doctors like those at Dana-Farber and Brigham and Women’s, researchers, The Jimmy Fund and most of all, the prayers, love and positive vibes from all around us… I can’t help but think of how holiday season is approaching and we’re all going to go out and spend oodles of money on things no one really needs and, in some cases, don’t even want. Consider the charities this Christmas: buy your holiday cards, make a donation or even name a gene, all through Dana-Farber‘s web site. How much easier could shopping get – and you could help make many dreams come true…

Read Full Post »

Written on Oct. 21, 2012

This slideshow requires JavaScript.

This was without doubt the pinkest weekend of my life. It was the peak of the pink month, at least for me. First it was the Komen MA Race for the Cure, and then the Nashua Harley Davidson Making Strides Against Breast Cancer Fashion Show and Live Auction benefit. It was an incredible show of support at both events. Every time I attend an event with the breast cancer community I am amazed at the positive, inviting, friendly vibe. And it was the same at the Harley event, too, where we felt as welcome as if we were one of the family, even though Vanessa, Kevin and I had never been there before. Thank you to Robin Dixon, who organized the incredible fundraiser – we can’t wait to go again next year, and plan to bring more family and friends! The walk was great, too. I was joined by my good friend Alicia, who conveniently lives just down the road from the park where the walk was held, and Linda, who just finished radiation – so it was a celebration of her completing treatment! While I hate being constantly reminded that I have breast cancer, I am very thankful for the heightened awareness and support, which is leading to more research and eventually, hopefully, a cure for all types.

Read Full Post »

Thank you, Tara, for running the Amica Half Marathon in Newport for Dana-Farber! While this was not how I thought this race would go when we signed up for it so many months ago, I was excited to lead your cheering squad and proud of you for running to help conquer cancer! Hopefully next year I’ll be able to run with you…

Don’t worry, all, you don’t need to run a race to make a difference: donate to Tara’s run here. Thank you!

Read Full Post »

« Newer Posts - Older Posts »