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Posts Tagged ‘The Jimmy Fund’

I thought I could get away from cancer. I thought by ending the blog, I wouldn’t think about it every day. Ha! Once you’ve been diagnosed, it doesn’t matter that you’ve finished chemo, radiation, multiple surgeries and been declared “cancer free.” It is always there. With every strange feeling, with each routine health screening, with every glimpse of myself with hair! And now, as many of you know, cancer is my ‘day job,’ too. I wondered if working for an oncology organization would be difficult or depressing, but it’s really the opposite: it energizes me and gives me hope that we can really find a cure (or, realistically, multiple cures)!

If you read my last blog entry, you know that my heart broke over the recent death of a breast cancer sister. This must stop! Help us create happy endings by funding the research needed to find better treatments and cures for all cancers. There are many ways you can help:

Join our fabulous team!!!

Join our fabulous team!!!

  • If you live too far away, are busy that day or just prefer to donate rather than walk, while we will miss your company, we would so appreciate any donation. You can donate by clicking here – and please don’t forget to complete your company’s matching gift request, if applicable!
  • Do you need anything for your kitchen? Shop one of our fundraisers and not only can you get what you need, but a portion of the proceeds will go toward our walk!
  • Have an idea for a fundraiser that can be done by Sept. 21? Please e-mail me and let’s talk!
  • Finally, another of my very favorite events of the year is coming up: Runway for Recovery! Join us on October 16 at the Revere Hotel for my (I never thought I’d say this) modeling debut! Buy tickets here, come cheer me and the other survivor models on, and you will be helping children who have lost their mothers to breast cancer, as well as providing opportunities for health care providers who care for such patients. It’s such an inspiring night – a true celebration of life, sisterhood and survivors.
Last year, I volunteered with Genzyme friends for Runway for Recovery - and excited to be modeling this year!

Last year, I volunteered with Genzyme friends for Runway for Recovery – and I’m excited to be modeling this year!

Please remember, together we really can make a difference and help find a cure! Thank you for helping us kick cancer!!!

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I love lists. Nothing helps me feel more organized and in control than making a thorough list. I make lists for everything: to-do lists, topics I want to cover in this blog, places to visit, lists for Nick. And I write the lists on everything from napkins to the back of receipts (and sometimes even in my iPhone) and hopefully they eventually get transferred into my Arc notebook (best invention ever: moveable pages, so I no longer agonize over what to write on the first page). And it’s the time of year for the list of all lists: New Year’s resolutions.

Before I jump into my latest list focused on 2014, I want to take a minute to look back on 2013. I can hardly believe it’s over! It definitely beat the 2011/12 combo hell year by eons – especially the last few months – but wasn’t exactly a cake walk:

With Nick and Tara, ringing in 2013.

With Nick and Tara, ringing in 2013.

  • It began with me nearly bald, with just some wisps making their way back, and still going through radiation, with one deflated boob.
  • One of my dear friends became a US citizen, at an incredibly moving ceremony at Faneuil Hall, which I was so honored to witness.
Boston, February 9. 2013

Boston, February 9. 2013

  • My birthday was marked by one of the year’s biggest blizzards – an appropriate end to my hellish 38th year – and getting to reinflate my right boob.
Disney March 2013

Disney March 2013

  • Celebrated new beginnings (and the end of treatment other than Tamoxifen) with Kevin, Tara, Nick, Mike, Shannon, Julian, Janie, Monique, Steve and Kelli, and many other family and friends in fabulous Walt Disney World.
Pre-marathon breakfast in Ashland with our Warrior paint on!

Pre-marathon breakfast in Ashland with our Warrior paint on!

  • April brought incredible highs and lows with our Genzyme Boston Marathon Team fundraisers and celebrations, and then the shocking tragic end when the marathon was viciously cut short for the team, Tara and thousands of others. It was the scariest day of my life, as I know it was for so many others.
One Fund fundraiser at Towne, April, 2013

One Fund fundraiser at Towne, April, 2013

  • And less than two weeks after the marathon, Andrew and I threw together a fundraiser for the One Fund that brought in more than $3,000 for the victims.
BAA 10k, June 2013

BAA 10k, June 2013

  • I ran my first 10k (Thanks Lisa!), and learned to deal with lymphedema. (Note to self: Don’t forget sleeve when running!) I also learned to love headbands – anything to control the uncontrollable curls (but ever thankful for any hair!).

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  • It was a summer – a year, really – of incredible concerts with my best friends and family.

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  • Fall brought the Jimmy Fund Boston Marathon Walk (thank you so much to all who sponsored us!!!) and Paris.
  • Of course, it also brought the month of Pink – and I was so thankful so many family and friends joined me for many of the walks, runs, fundraisers – and to cheer me on while I got my first tattoo!
  • Both sets of my parents celebrated 30 years of marriage – and I couldn’t be more thankful for all four of them, and that they each found each other. I know I wouldn’t be me without all of them (or have my two awesome, unique brothers).
  • The Red Sox won the World Series!
  • Several of my friends and family celebrated milestone birthdays and either met, got engaged or married the love of their lives… in fact, I have  (I can’t believe I’m admitting this publicly) Tinder to thank for getting Cory and me together, which really has made my whole life happier…
Best second date EVER!

Best second date EVER!

  • And in December I finally had what was hopefully my final cancer-related surgery: the implants. And I can finally pull my hair back into a baby pony tail. A pretty great way to end 2013…

Now, I’m not one who subscribes to the idea that resolutions are only for January 1. I make them – and evolve them – throughout the year. In fact, I just stumbled upon the list I made on the plane ride home from LA in March 2012, the night before I found the first lump and life changed forever. It’s actually a little painful to glimpse the person I was that day, so innocent of  what was growing inside me. I was thinking about cleaning out my wardrobe, getting my finances in order, running more, getting a healthier love life, career development opportunities. So… typical. Most of the list was simply forgotten, as all of my focus shifted to ridding my body of the cancer. Some of the things on that list – like go to France and join a community board – happened in 2013. Some are just making it back to my list now for 2014 – like get more involved in a communications industry organization and run a half marathon. (Half, Phil, half. Not whole. That’s not on any of my lists!) And others will probably be recurring themes on my lists forever: be healthier (run more, eat better), get organized, spend less.

But this year’s list is different. Yes, I am sure I will have sub-lists with many of those same things on it, but I want to prioritize and simplify my 2014 list.

  1. Live in the present. Cory, his mom and I debated the wording of this one, as he insisted on pointing out that you really can’t live in any other time unless you have a DeLorean and are friends with Doc Brown. But you know what I mean! Don’t dwell on the past and don’t agonize over the future. And don’t live on my phone/computer. I don’t need to see every Facebook, Twitter or Instagram update – constantly looking at my phone takes away from the real life I’m living, and the time I’m spending with the ones I love. Let yourself be in the moment, right now, right here, and enjoy it. Which really leads to…
  2. Slow down. I’m always running around, crazy busy. And it’s not always necessary, or for things that matter.
  3. Spend time with the people I love. That’s what does matter. The people in your life. And I am so blessed to have many incredible people in my life and I want them to know how much they mean to me. And nothing says that more than the gift of your time. I know I am happiest when I’m just hanging out with my friends and family…
  4. Be healthier. Ok, yes, this is on the list above, and is ‘typical’ but I can’t help it. I texted Tara the other day that as much as I hate running, I need it. I’ve been in a bit of a funk lately, grouchy more than normal and it hit me: I am simply happier when I’m running and eating better. So I’m actually anxious for this mandated rest period while my chest heals to end. Of course, I hate the cold, so the real running may not completely ramp up until spring, but I can start eating better and running on the treadmill. It will help make me…
  5. Be a better person. I stole this one from Cory. I love it. It’s exactly what I want to do this year. I want to be a better person for me, and for everyone around me – and ultimately to help make the world a better place. I want to pay it forward for all the love and kindness you all bestow upon me all the time. I’m going to think more positively and mute the negative. I want to learn – both to enhance my knowledge for my career and for enjoyment. I want people to know they can count on me, I want to realize that I don’t need to do everything myself and I want to learn to trust. I want to help people through their tough times, as so many have helped me these last couple of years. Above all else, I want to say “thank you” more, to pray more, and to make sure that everyone I love knows how much they mean to me. Kind of like Live Like You Were Dying, huh?

I know many others are thinking along the same lines as me on their lists this year. In fact, Tara posted a link to this great list on my Facebook page, and she really is right on: Resolving to Care More and Slow Down in 2014 by Doree Shafrir for BuzzFeed. Can you imagine how much happier we would all be if we all had lists like this – and actually followed through with them? I’m going to do my best to live this list in 2014. Please help me – call me out if I’m not living it!

Wishing you all your happiest, healthiest year yet! And I want to hear what’s on YOUR list!

xo

Amy

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I wasn’t going to post about #GivingTuesday. To be honest, I was a little annoyed with all the e-mails that flooded my e-mailbox and solicitations that filled my actual mailbox the last couple days, all begging for my donation. It’s not because I’m a scrooge (although that could be debated) or anti-giving (you KNOW that’s not true), rather because I think giving should be done all year long, not just one day in December. But that’s not what I’m writing to say.

Today one of my friends from high school repeated what I went through just over a year and a half ago: she went to Brigham and Women’s for a double mastectomy because just a few weeks ago, the day before her 40th birthday, she was diagnosed with breast cancer. Not what you plan for 40. Since that day, I have been trying to help her the best I can, answer all her questions, explain to her the reality of what to expect, fill in the details that no nurse or doctor can tell her.

And my heart breaks for her, and her family. I know she is strong, and not only is she going to beat this, but kick its ass, just like another friend from high school is doing right now, busting her way through radiation. (Yay Bonnie!!!!) It’s because her life is now changed forever, and change is never easy. And because this is a never-ending journey that’s going to have a lot more downs than ups for a little while. And that little while will seem like forever…

But she is very similar to me in many ways. She is an incredibly strong and determined woman. She told me from that first day that she was going to kick this and was already ready to have the double mastectomy. She is naturally positive – which is so great not only for her, but her kids and husband. The more she can remain positive, so will they. And, I think tied with the optimism for most important,  she has an incredibly large and loving support system. They will get her through this. I know I never could have gotten through this without all of you…

And I also don’t believe things would’ve been nearly as easy for me if I’d been anywhere else but Dana-Farber and the Brigham. I’m confident we’ve both been in the best hands there. So that is what is compelling me to write on this Giving Tuesday. Maybe you don’t spread your giving throughout the year. Maybe today is your day. If it is, please consider giving to Dana-Farber and The Jimmy Fund – you can even support them by holiday shopping in their giving catalogue. Or, another great related organization that could really use your support is Bright Pink, which is focused on educating and empowering young women about breast and ovarian cancer.

Honestly, there is no shortage of needy and deserving organizations to give to today, or any day. Put your money where your heart is. Think about what really matters. Happy #GivingTuesday.

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I’ve been so bad – totally procrastinating about updating this blog. I hate it when I do that. So much builds up, and then it weighs on me, and I know I’ll forget something… oh well! Deep breath and here are the high (and low) points:

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  • THANK YOU, thank you, thank you to EVERYONE who donated to our Boston Marathon Jimmy Fund Walk! Whether you donated $10 or $150, every single cent helps in the fight against cancer! Together, Heather, Tara, Amanda, Calley and Mia-Claire raised more than $3,400!!! I’m so proud of us – especially the little girls for joining us and being so fabulous and not only walking the 13.1 miles, but even throwing some cartwheels in along the way! And it’s not too late to sponsor our team – please help the girls get to their $100 minimum by sponsoring them here: Team Inspire Boston. Thank you!!!
  • As soon as the walk was done, Tara and I ran (well, not literally – we took the T…) back to my house, I showered, changed and she drove me to my cousin’s wedding. It was so fabulous seeing some of my family who I haven’t seen in so long, but couldn’t help crying as I left because my time with them was too short – but I had to catch a plane…
  • Tara and Ella were the best chauffeurs and cheered me up en route to Logan. The flight was ok (I fell asleep praying as we went through major turbulence, but hey, we landed, so all was good) and my arm faired pretty well. (Damn lymphedema.) I put my compression sleeve on while waiting to board the plane and I could tell by the look in the eyes of the woman sitting across from me that she knew exactly what it was for. She looked so kind and sympathetic, I both appreciated it and wanted to scream. I hate feeling like the girl who had cancer!!! Anyway, after all the walking and the flights there and back, there’s not really much noticeable swelling, and only a little pain, mainly in my hand. I have to get back to doing the massages every day, but I haven’t even been doing that. At least I’ve been wearing the sleeve when running. That’s something, right?

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  • Paris: it was a whirlwind work week. I was disappointed by how dark it was in the mornings, so my visions of waking every morning and running along the Seine quickly vanished out the window. I did get one good, five-mile run/walk in on the last day before my flight. It was great, even if the weather wasn’t that wonderful. The conference was really great, though – especially meeting Sanofi communications people from all over the world and hearing about all the great progress we’re making in the healthcare industry. I’m so proud to work for Genzyme, a company that truly cares about making a difference in people’s lives.

Didn’t I write something a little while ago about slowing down??? Hmmm… don’t think that’s happening any time soon…

 

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Yesterday I did a training speedwalk to get an idea of how I’ll feel next Sunday at the Boston Marathon Jimmy Fund Walk. I’m planning to do the half marathon – 13.1 miles – so I did as long of a walk as I had time for. It ended up being 8.5 miles, at about a 16 minute pace. And overall, combined with the rest of the day, I did about 12 miles. And… today I felt good! No arm swelling or pain, and I’m not all achy – both great things. So I’d say I’m ready!

Heather announced that despite her back issues she is determined to do the full 26.2. The second I heard that I jumped back to wanting to do the same. But friends convinced me that’s stupid, I need to think about Paris and really can’t risk it. So, still begrudgingly, I won’t. But I will next year!!! And I can’t wait for Tara and I to join Heather and Amanda – and hopefully others who want to join us on Team Inspire Boston (I mean you! Yes, you!).

So just one week to go – so please let us know if you’ll join us, or if not, please support us by donating and help us kick cancer once and for all!!! Every cent counts… thank you, thank you, thank you!

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I am frustrated. (Hmmm… I don’t think this is the first time I’ve started a blog entry with those words!) Ever since March 2012 when I was diagnosed with breast cancer and my dear friend Heather said “We are doing the Jimmy Fund Marathon Walk in your honor!” I’ve wanted to walk the full 26.2 miles. Last year I was still going through chemo, and hadn’t even begun radiation, so was only able to do the last five miles with the team. I said this was going to be my year!

Now it’s looking like it’s not. No worries, it’s not severe health related or anything truly bad like that, it’s just about listening and being smart. You see (maybe you should sit down, this is such a shock coming from me), I have a lot planned on September 8.

  • First there is the Jimmy Fund Boston Marathon Walk. I intended to walk the full 26.2 miles, beginning at 6:30 in the morning and guesstimating being done about 2 p.m.
  • Then it’s my cousin Rick’s wedding late that afternoon in Wrentham…
  • And as if that isn’t enough for one day, I need to then get to Logan for a 10:30 p.m. flight to Paris. (Yes, Paris – for work.)

At first it was like “great – you’ll be so tired, you’ll conk right out and sleep the whole plane ride!” Ah, but I can’t! We can’t forget the delightful lymphedema in my right arm! I was told that I will need to be up exercising it and walking around every hour of the flight – oh, because of the fear of blood clots, too, because of the tamoxifen. And this is also if my arm isn’t already swollen from the intense walk…

So my close friends and family have all chimed in. And there has not been one person who is in favor of my doing the whole 26.2. In fact, some have quite vehemently told me I will NOT be doing the full walk. (Note: when told I absolutely cannot do something, that usually makes me want to do it even more.) Arrrggghhhhh!!! Why does it all have to be on the same day???

But none of those dates and times are in my control. What is in my control is my body. And how much I put it through that day (and every other). Sometimes I forget I’m not superwoman. That I have limitations. (I know, this blog is full of shockers tonight, huh?) I honestly don’t want to be in pain or have an abnormally huge right arm for my Paris trip. I want to actually be in the work meetings I will be there for, not in a Paris hospital, simply because I was stubborn and insisted on doing it all.

So that’s that. I will only walk the half marathon: 13.1 miles. I’m trying to get over the feeling of letting people down by not walking the whole thing. I feel like I’m letting everyone down (not really sure who everyone is, but just everyone). The Jimmy Fund. Dana-Farber. Everyone who is donating to my walk. Myself. I know in my head that it’s not true; no one else feels that I’m letting them down. I will keep reminding myself that. And I will remember that, thanks to Dana-Farber and all the awesome doctors, researchers, nurses and everyone there, I am here and able to walk and raise money to help kick cancer!

And thank you to everyone who has sponsored me and my team – Team Inspire Boston – so far. I’m one-third of the way to my personal goal, and a quarter of the way to our team goal, all thanks to YOU! If you haven’t yet donated, please visit my personal donation page – even a few dollars – every cent counts and helps us conquer this horrid disease! Or even better: join us for the walk! Any distance is welcome! Go to Team Inspire Boston to sign up and enter code JF2013 for $5 off the registration fee. We’d so love to have you cross the finish line with us!

Oh, and speaking of Dana-Farber and the Jimmy Fund – it’s the annual telethon, which Nick and I were part of this year… and I guess in a way this year, too. I just saw this pop up in my Facebook Newsfeed from The Jimmy Fund:

jimmyfundtelethonCrazy to think that I looked like that one year ago. Boy, am I happy to have hair again! But if (literally) baring my head helped inspire someone to donate and help #KCancer, it was worth it!!!

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For some reason I find it funny that on the same day that Dana-Farber published my blog on Dating and Cancer 101, I went to the House of Blues to see Pat Benatar sing Love is a Battlefield. Yes, I’m a child of the 80s and much of what I learned about love was through lyrics.

We are strong
No one can tell us we’re wrong
Searching our hearts for so long
Both of us knowing
Love is a battlefield

And, as anyone who reads this blog regularly or knows me at all knows, I love music. There’s a constant soundtrack to my life and Love is a Battlefield is definitely one that has been a recurring theme!

Back to the blog for Dana-Farber. I would do anything for that place – and to help others going through the nightmare that was my last year. So when Robbin asked if I’d be interested in writing on this topic, I said sure, why not? No, it’s not easy admitting you were lonely and, well, maybe not quite desperate, but desperate for some attention. And some reassurance that you’re not just still attractive, but actually datable.  But if sharing that vulnerability with others helps even just one woman going through treatment know she’s not alone in what she’s feeling and fearing, it’s worth it. So I wrote it and it debuted on Dana Farber’s blog and Facebook page today.

What’s also kind of funny is that while the experience I wrote about for the blog took place a year ago, I’m in a similar place now. The only real difference is I have some real hair back – which is a very big thing, I must say. And I’m not going through treatment, so definitely look and feel healthier. And with all that comes more self-confidence, which is really everything.  Every day I get another inch further away from the cancer patient label and back to my prefered regular girl designation. But as far as dating goes, it’s not that different cancer or no cancer. Either way, love is a battlefield…

With my friends Gail and Abby at the Pat Benatar and Neil Giraldo concert at The House of Blues in Boston.

With my friends Gail and Abby at the Pat Benatar and Neil Giraldo concert at The House of Blues in Boston.

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