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Archive for the ‘recovery’ Category

Just a quick update before I fall asleep (again) to let all know I am doing well! Week two of the Taxol went a million times better than week one. While I’m not 100% sure what caused the improvement, I think the heavy meds probably helped! I took (following doctor’s orders) three decadron and an ativan early this morning before heading to Dana-Farber.

Once at the hospital, it took a while to find a new vein to use – the one in my left hand is pretty well gone – last week’s infusion was incredibly painful from my hand down through my arm, so we decided it’s fried from all the A/C. (I don’t have good veins – they are small and I’ve never even been allowed to donate blood, so they aren’t loving this.) We can’t use any in the right arm, since all my lymph nodes were removed in surgery – can’t even have blood pressure cuffs on that arm ever again. (Note to self: must do better protecting that arm…) So after trying a bunch of things like hanging my arm down and making fists, covering it in warm, wet compresses, etc., we found a vein that would do – and it seemed to work well, with minimal pain.

After the labs (all looked good), it was back to Benedryl. Had 50 milligrams again and was not sick – yay! Then more Decadron and Ativan, Prilosec and finally Taxol. Throughout all I was pretty hazy, trying to be an active participant in mom and Tina’s conversation, but I honestly couldn’t tell you too much of what was talked about. Yes, they laughed at me somewhat swaying down the hallway when we were through, commenting on my high, but were also there to catch me when I stumbled, so I’ll forgive them! 😉 The main thing was I made it through without any of the major reactions/side effects, and then went home and pretty much crashed.

But tonight I had my energy back and mom and I even took a brief walk to the Brookline Booksmith, the bookstore around the corner, and was surprised to see a blast from my teen years: Molly Ringwald! What girl didn’t identify with her in at least one of my teen favorites, like Pretty in Pink, Sixteen Candles (Aw, Jake!) or The Breakfast Club??? So I had to do it – I bought her book and had her sign it.

Now it’s back to work tomorrow, and to bed now so I can say my prayers and thank God for such a good day. Two down, ten to go!

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Yes, today was the Boston Marathon Jimmy Fund Walk. And while for the past several weeks, we’ve been fundraising as much as possible (thank you, thank you, thank you to EVERYONE who donated!!!!), the walk is not just about money. It’s about people. Dana-Farber and The Jimmy Fund know that – that’s why they had patient and doctor quotes all over the place, from start to finish. And they highlighted a patient at every mile marker. Our team, Amy’s Victorious Secret (Heather named it – and had the shirts made), wanted to highlight people, too. We did that by decorating (thanks to Heather’s mom, Diane, and her love of craft materials) the backs of those very pink shirts with names.

So many names came to mind. Diane, Heather, Amanda, Jennene and I sat around Diane’s dining room table (after eating a fabulous feast for which we also had Diane to thank) trying the fabric markers, arranging stickers and trying not to smudge the fabric paint as we shared the names we were adding to our shirts. And for some, the people and stories behind the letters on the shirts.

For me, it started with donations: some friends who donated were honoring loved ones by donating, and I wanted to recognize that, and honor them, too. Then there are those who, like me, are fighting right now (or recently) and I wanted them to know they are in my heart, mind and prayers, and that I am rooting for them. There are also names of people who fought their fights and won – and have shared their words of wisdom and been sources of inspiration for me. This was one more way I could say thank you. Finally, some of the names are family members or friends who have passed away and I wanted to remember them.

This was also about the people around me today: new friends like Amanda and Jennene; old friends like Kevin, Jeremy and Diane; and especially about Heather, who has been one of my dearest friends since we were in the fifth grade and wanted to be Solid Gold Dancers. Let me tell you about Heather…

Heather has been a source of inspiration for me since we were 10-years-old and she refused to listen to other kids on the playground when they told her I wasn’t cool and she shouldn’t play with me. She has always been true to herself, never caring what anyone else thinks. And because she has such an incredibly lovable and optimistic personality, everyone wants to be her friend. Heather has faced more physical trials than most people I know. We joked last night that not only shouldn’t we keep everyone up with our talking and giggling all night (we slept over Heather’s parents’ house, just like the old days), but we also shouldn’t have any late-night hospital visits! I’m afraid Heather used to have such bad asthma attacks, it wasn’t unusual for us to have to make a road trip in the middle of the night to make sure she was ok. During the day at school, we had to watch everything she ate – because as much as she loved food (and somehow never put on an ounce of weight), she was allergic to practically everything!

Then Heather was diagnosed with severe scoliosis. Not only did she have to wear a large plastic brace through much of high school, she also had to have multiple surgeries to have rods placed in her back (and fixed when they broke). I’ll never forget our conversations (often with our other best friend Nicole) about the future, and questioning if Heather would ever be able to have children or be able to dance again…

Well, not only did she have children, she married her high school sweetheart Jeremy (who I got her together with at a dance – he’s the tall one in the pictures), had four incredible children (including twin boys who are just starting college – and her two youngest are in the decorating photos above) and we spent our last birthdays dancing the nights away. No, she did not become a Solid Gold dancer: she became one of the best nurses in the industry. In fact, she is even teaching her first college course this year, sharing her knowledge with others.

Just about two years ago, we had a huge scare: Heather was in a bad car accident and broke her back. Amazingly, you would never know it today. In fact, last year she walked the full 26.2 mile Jimmy Fund Boston Marathon Walk with Amanda. And this year, right after I was diagnosed, Heather asked if she could start a team for this year’s walk in my honor. How could I, why would I, say no? (Of course the picture she posted on the team site was another thing… 😉 )

Heather’s unstoppable energy, resilience and determination have been an inspiration to me the majority of my life. And no matter how much time goes by that we don’t talk, how busy our lives get, I know that she is always there for me – always has my back – and that when we get together, it won’t seem like a moment has passed.

Thank you for today, Heath, and for always being one of my angels on earth – love you!

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Saturday night, Tina and I went to the Kenny Chesney and Tim McGraw concert at Gillette. I’d been looking forward to this since buying the tickets in, I think, February. I remember thanking God when I got my chemo schedule because the concert was almost two weeks after my fourth chemo round and I figured I’d be able to drag myself there even if I still wasn’t feeling well. And luckily I was already back to feeling just fine!

When we got to the stadium, Tina surprised me with a letter. Not just ANY letter, but one that she wrote using Kenny Chesney and Tim McGraw song titles. And I’m not just sharing it because it is so cool (although it is), but because I think it gives a glimpse into how this damn cancer thing has impacted some of my dearest friends…

My Old Friend,

Hey Now, as I sit here looking at a Blank Sheet Of Paper, I couldn’t resist the opportunity to talk about Me And You. This concert is seriously happening Not A Moment Too Soon!  Unfortunately, My Little Girls are not nearly as excited about this concert, since they’re not going, but I just can’t wait for you to Come Over!!!

The past few months I feel like I’ve been Living In Fast Forward and have been feeling kinda Angry All The Time.  Last week, I was actually thinking, well, There Goes My Life.  The silver-lining (as usual) is heading Somewhere With You.  I love Summertime and our concerts.  Life seems to, once again, be The Road And The Radio and it appears that every Flip Flop Summer, You Save Me.

I know the past five months Got A Little Crazy (to say the least) and has seriously been a Wild Ride. I feel confidant telling you that I truly feel like I know How Forever Feels, but yet, Time Flies. Your breast cancer diagnosis really did Scare Me and I hope to Never Feel That Way Again.  I am glad that you Give It To Me Strait as I Wouldn’t Want It Any Other Way, but everyone knows that you’re Only Human and that you are clearly doing Whatever It Takes to tell that horrid cancer that you Will Not Fall Down.  I have my Suspicions, although, I can’t imagine how difficult the moments are when you’re alone and you allow yourself to be honest with you.  I know there’s so much you don’t allow others to see.  To be honest, there have been moments where I know I Don’t Blink as I have felt helpless in helping you… but… then you speak, and I am completely reassured that you are Always Gonna Be You, cancer or no cancer, You Just Get Better All The Time!  I can’t wait for the end of this whole run of doctors and treatments to be over for you… and to celebrate your attitude, your being The One to beat cancer (which is No Small Miracle) and to shout out at the top of our lungs Touchdown Jesus!!!!

I’m thankful you have so much support and that you know that you’re not In This Boat AloneAll I Need To Know is you believe me when I say that I Will Stand by you no matter what and would do anything To Get To You if you needed me, after all, That’s Why I’m Here!  I know all of this will be much Better As A Memory and that there’s more to come Down The Road and I know that you will deal with that with the same Be As You Are outlook but Just Not Today

…Today, we once again get to Set This Circus Down, be Still, feel a little Freedom from all the I’m Workin, ShiftworkLet the Last Dollar Fly Away and break free from RealityI Need You to Let It Go… ALL of it, and truly break free from the past few months. So, instead of sitting Where The Green Grass Grows, we Will Stand, Somewhere In The Sun, in front of an Old Blue Chair with an awesome view of your Island Boy (who I’m sure you begged to Please Come To Boston), Kenny, as he sings about Guitars and Tiki Bars with my Indian Outlaw and Real Good Man, Tim, For A Little While. Ohhh, he definitely brings out The Cowboy In Me or Something Like That but that’s just Between The River And Me! 😉

You are one of the world’s most Beautiful People and are certainly the Spirit Of The Storm.  Your French Kissin’ Life and Live A Little, always Smiling, attitude is contagious.   You’re optimism makes me believe that no matter what life throws at us we can ask, Do You Want Fries With That?

This Is Our Moment with the Brothers Of The Sun!  So, tonight I want you to know that When The Sun Goes Down, When The Stars Go Blue and the Magic of the concert begins we will Live Those Songs in Boston while pretending we’re going Coastal, we’ll Feel Like A Rock Star while singing, I Like It, I Love It, in our most Southern Voices and I’m absolutely certain that we’ll Sing ‘Em Good My FriendIt Doesn’t Get Any Countrier Than This and I am looking forward Just To See You Smile.  This is definitely The Good Stuff and I can honestly say for a moment like this, with My Best Friend, I Never Wanted Nothin’ More!!!!!!!!

So, are we gonna have a good time?  Well, Truck Yeah!!!!

I love you BFF,

Tina

I was laughing so hard at the end of that – a perfect way to start the night, and a letter to treasure forever! And while we DID have a blast, I’m afraid I wasn’t able to completely forget the c-word: I cried through Live Like You Were Dying – it obviously really hit home – and one of my other friends, Laura, who was sitting in another section even texted me during that song, which made me cry even more! I saw Heather and some of her family (which was like my family through middle and high school) for the first time since all this and it was hard to hold back the tears, then, too. Especially when Heather caught one of my lashes that had just fallen out and held it so I could make a wish … (And Heather, Laura and I ran into another friend from high school – Kristin – it was like a reunion!) Even on facebook another friend, Heather P-C, sweetly reminded me to stay hydrated!

I think it goes without saying that I am the luckiest girl in the world, with the best friends (near and far) anyone could wish for…

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