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Posts Tagged ‘bald’

I am frustrated. (Hmmm… I don’t think this is the first time I’ve started a blog entry with those words!) Ever since March 2012 when I was diagnosed with breast cancer and my dear friend Heather said “We are doing the Jimmy Fund Marathon Walk in your honor!” I’ve wanted to walk the full 26.2 miles. Last year I was still going through chemo, and hadn’t even begun radiation, so was only able to do the last five miles with the team. I said this was going to be my year!

Now it’s looking like it’s not. No worries, it’s not severe health related or anything truly bad like that, it’s just about listening and being smart. You see (maybe you should sit down, this is such a shock coming from me), I have a lot planned on September 8.

  • First there is the Jimmy Fund Boston Marathon Walk. I intended to walk the full 26.2 miles, beginning at 6:30 in the morning and guesstimating being done about 2 p.m.
  • Then it’s my cousin Rick’s wedding late that afternoon in Wrentham…
  • And as if that isn’t enough for one day, I need to then get to Logan for a 10:30 p.m. flight to Paris. (Yes, Paris – for work.)

At first it was like “great – you’ll be so tired, you’ll conk right out and sleep the whole plane ride!” Ah, but I can’t! We can’t forget the delightful lymphedema in my right arm! I was told that I will need to be up exercising it and walking around every hour of the flight – oh, because of the fear of blood clots, too, because of the tamoxifen. And this is also if my arm isn’t already swollen from the intense walk…

So my close friends and family have all chimed in. And there has not been one person who is in favor of my doing the whole 26.2. In fact, some have quite vehemently told me I will NOT be doing the full walk. (Note: when told I absolutely cannot do something, that usually makes me want to do it even more.) Arrrggghhhhh!!! Why does it all have to be on the same day???

But none of those dates and times are in my control. What is in my control is my body. And how much I put it through that day (and every other). Sometimes I forget I’m not superwoman. That I have limitations. (I know, this blog is full of shockers tonight, huh?) I honestly don’t want to be in pain or have an abnormally huge right arm for my Paris trip. I want to actually be in the work meetings I will be there for, not in a Paris hospital, simply because I was stubborn and insisted on doing it all.

So that’s that. I will only walk the half marathon: 13.1 miles. I’m trying to get over the feeling of letting people down by not walking the whole thing. I feel like I’m letting everyone down (not really sure who everyone is, but just everyone). The Jimmy Fund. Dana-Farber. Everyone who is donating to my walk. Myself. I know in my head that it’s not true; no one else feels that I’m letting them down. I will keep reminding myself that. And I will remember that, thanks to Dana-Farber and all the awesome doctors, researchers, nurses and everyone there, I am here and able to walk and raise money to help kick cancer!

And thank you to everyone who has sponsored me and my team – Team Inspire Boston – so far. I’m one-third of the way to my personal goal, and a quarter of the way to our team goal, all thanks to YOU! If you haven’t yet donated, please visit my personal donation page – even a few dollars – every cent counts and helps us conquer this horrid disease! Or even better: join us for the walk! Any distance is welcome! Go to Team Inspire Boston to sign up and enter code JF2013 for $5 off the registration fee. We’d so love to have you cross the finish line with us!

Oh, and speaking of Dana-Farber and the Jimmy Fund – it’s the annual telethon, which Nick and I were part of this year… and I guess in a way this year, too. I just saw this pop up in my Facebook Newsfeed from The Jimmy Fund:

jimmyfundtelethonCrazy to think that I looked like that one year ago. Boy, am I happy to have hair again! But if (literally) baring my head helped inspire someone to donate and help #KCancer, it was worth it!!!

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For some reason I find it funny that on the same day that Dana-Farber published my blog on Dating and Cancer 101, I went to the House of Blues to see Pat Benatar sing Love is a Battlefield. Yes, I’m a child of the 80s and much of what I learned about love was through lyrics.

We are strong
No one can tell us we’re wrong
Searching our hearts for so long
Both of us knowing
Love is a battlefield

And, as anyone who reads this blog regularly or knows me at all knows, I love music. There’s a constant soundtrack to my life and Love is a Battlefield is definitely one that has been a recurring theme!

Back to the blog for Dana-Farber. I would do anything for that place – and to help others going through the nightmare that was my last year. So when Robbin asked if I’d be interested in writing on this topic, I said sure, why not? No, it’s not easy admitting you were lonely and, well, maybe not quite desperate, but desperate for some attention. And some reassurance that you’re not just still attractive, but actually datable.  But if sharing that vulnerability with others helps even just one woman going through treatment know she’s not alone in what she’s feeling and fearing, it’s worth it. So I wrote it and it debuted on Dana Farber’s blog and Facebook page today.

What’s also kind of funny is that while the experience I wrote about for the blog took place a year ago, I’m in a similar place now. The only real difference is I have some real hair back – which is a very big thing, I must say. And I’m not going through treatment, so definitely look and feel healthier. And with all that comes more self-confidence, which is really everything.  Every day I get another inch further away from the cancer patient label and back to my prefered regular girl designation. But as far as dating goes, it’s not that different cancer or no cancer. Either way, love is a battlefield…

With my friends Gail and Abby at the Pat Benatar and Neil Giraldo concert at The House of Blues in Boston.

With my friends Gail and Abby at the Pat Benatar and Neil Giraldo concert at The House of Blues in Boston.

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One year ago today I shaved my head. So many other things were happening – I was moving, I had just started chemo, my relationship was ending, I fell and fractured my arm and bruised my knee – and then my hair started to fall out, so I shaved it. I remember the day so well; thinking about it makes me feel like I’m reliving it. (It all really hurt, some mentally and some physically, so I’m not going to spend much time thinking about it or rehashing it here.) But then in other ways, it feels like it was a lifetime ago. Sometimes I’m amazed at all that happened in the span of a year!

Last night, I took a break from unpacking (yep, I moved again!) and Tina and I went to see Tim McGraw at the Comcast Center. And of course he sang Live Like You Were Dying. Just as last year when I saw him perform it live at Gillette, it wrecked me. As I listened to the words (and cried my eyes out), I thought. Have I lived like I was dying? I know that was my original intention, but what have I really done in this past year? The first thing that jumped in my head was “survived.” I have survived the year. I fought through the year. I struggled to remain some semblance of normalcy through the 24 weeks of chemo and six weeks of radiation. I bought any beauty product that I thought might make me look more normal while bald. I tried to keep everything going even when I felt like just going to sleep.

I didn’t go sky diving. I haven’t been mountain climbing or bull riding since my road trip in 2010. I’ve tried to stay close to my friends and family, but I haven’t seen or talked to them nearly as much as I would like or feel I should. In fact, my life has seemingly resumed its normal chaos, pace and craziness. Maybe that’s not a good thing. Maybe it’s time to change that.

The problem is, there simply is not enough time in any day, not enough days in a week, not enough… well, you get it. There are so many things I want to do and never, ever enough time to do it. So maybe what that song means is not just that I have to rush to do all the things I want to do (in case I die tomorrow), but to take the time to do the things that really matter. To spend what precious time you do have wisely. I need to think about that. And I will. But for right now I am happy and thankful. Happy and thankful to have hair again, to be settling into my new apartment, to have a job I love, and family and friends who mean the world to me. And that I don’t have to go through chemo this summer and remember to put lotion or a hat on my bald head!

Tim2013

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