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Posts Tagged ‘mastectomy’

Warning: Somewhat explicit content. Don’t read if you don’t want to know too much or face details (I wish I could heed this warning!)…

Oh. My. Gosh. I never knew showering (alone) could be so tiring! Late yesterday I had the fourth and final drain removed. I was so happy because in so many ways it signals freedom: no more required bed rest, a decrease in medication, I can begin raising my arms and doing the beginner arm exercises, and, most important, I only had to wait another day to shower – no more sponge baths!!!

After spending the morning visiting with Tina (and snacking on her incredible avocado dip), I took a deep breath and headed for the bathroom. And then I froze. As much as I was dying to get completely clean, it suddenly occurred to me that in order to do so, I would need to get naked. And then I might see.

This might surprise some, but in a way I am still in denial. I have not looked at it yet. I am pretending they are both still there. Every time the doctors checked it in the hospital, I didn’t look. Of course, I didn’t (always) clamp my eyes closed or deliberately look away, either, since I didn’t want them to notice that I was avoiding it and tell me – as the doctor in a book I read did – that I had to look and face it before leaving the hospital. And each time I’ve been back at the hospital, for the drain removals and dressing changes, I’ve also averted my eyes. And otherwise, including during my baths, I had my surgical bra with the dressings on, since I couldn’t get the area wet yet. But now I’ve been given the all clear.

I did everything I could think of in the bathroom, like brushing my teeth and weighing myself (and texting Tara to ask how much she thought my boobs weighed to see if maybe I really have lost weight, even if you don’t factor cutting them off – which made me feel a bit better) before taking a deep breath and getting undressed.

Yes, other than a brief accidental glimpse, I was able to avoid seeing my chest. I guess it’s somewhat easier when there’s basically nothing there sticking out. But you can also do a lot with your eyes closed. Of course, when you’re trying to get thoroughly clean, you can’t avoid some touch, and that was difficult enough (mainly feels like a mound of muscle on the outside, while I still feel so tight and achy, like an elephant stepped on my chest and caved it in, on the inside).

But boy, I never thought I could get so tired just washing my hair! I can’t lift my arms very high, so I alternated bending my head down (eyes closed of course) and bending it to each side and just using that arm. I was completely wiped after – and I didn’t even attempt anything as complicated as shaving!

I needed a nap immediately, I could barely stay on my feet. As I drifted off, I thought how I guess the next time someone in a review or interview asks if I have something I have to work on, I guess I could add ‘being in denial’ to the list. And I will work on it – just not yet…

And then I contemplated whether to share something this intimate or not – and obviously decided yes. Some may wonder why, so I’ll tell you: because as much as I loved the book I recently read about a woman’s similar experience – and the movie version that I just watched the other night online – I was really surprised at how little time was spent, especially in the movie, on this part – the recovery, pre-additional treatment. It feels so long, painful and tiring, and each day is something new. So I thought since many others have not gone into it, I would…

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I feel like I’ve been in a waking coma. My eyes have been open, I’ve been talking and somewhat eating, moving between my bed, the couch and the bathroom. The biggest diversions being a trip back to the hospital and a couple of walks down the street escorted by Mike, to get my legs moving and keep me from going stir crazy, and those wore me out for days. I haven’t read a book, heck I haven’t read a magazine article. I’ve only watched two full movies, a big night with my family on the couch. I’ve barely touched my new, light laptop, so hardly no email and no Facebook – just the thought made me tired. And I haven’t been great at returning texts, although that’s what I’ve probably been best about, since they are short.

I was ok with all that – something I never thought I would be. I thought just because my body was going to be laid up, my mind would be racing and fully functioning – boy, was I wrong. Last night it started, though. My mind began to get energy, and to feel cooped up. This morning (and by morning I mean 10ish) it was even more active, urging my body to catch up with it. I turned the laptop on and began writing this. After many breaks (can only look at the screen so long), I’ve written this post. My mind is pleased. While it is just a baby step, I feel quite accomplished, like I’m on the right track.

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I feel like I’m jumping into the middle of the story, without sharing the beginning (the whole last week or so since surgery), but this is the first time I feel up to being on the computer and I feel I need to jump to the punchline: Dr. G just called and told me I’m cancer free! Ever since I woke up from surgery and was told that they had to take all of the lymph nodes in my right arm because they detected some cancer in one of them, I (and all around me) have been holding my breath, waiting to hear if it has spread and if … well, you know. But it turns out that it was only in two of the lymph nodes and so they caught it before it spread and there are clear margins around where the two lumps in my right breast were. Hence, the giant exhale!

So now everyone (including me) is asking: what does this mean for treatment? Dr. G said he is not sure, as he leaves that to my oncologists, who I will see on May 15. They may want to be extra cautious, since I’m ‘so young’ and still do wither chemo or radiation and/or tamoxofin. Oh well – better any of those than more cancer.

I am going to sign off for now – just this bit has made me tired and I need to stay awake for the fabulous celebration meal Nick and Alivia are making me. But I have to say everyone has been beyond incredible to me. Mike has been by my side practically every second, taking care of me (and thus, my mother, too) and constantly reassuring me that no matter what everything will be fine. And he’s been right so far! And mom and Mark and Nick and Alivia have joined him in alternating between keeping me sane and calm, and laughing and crazy. And Tara and Tina helped keep everyone informed, as well as kept us company in the hospital. And I can’t believe all the gorgeous flowers, cards, texts, e-mails etc. Thank you to everyone for all the prayers, love and support. I know it was all of the positive thinking and prayers that scared the damn cancer away! So I couldn’t have done it without you! xoxoxoxo (And I am sorry I haven’t really been up for talking or texting or anything – I’m so achy and the meds make me a bit loopy and tired, but I hope to be back to myself soon and also promise to fill in more of the backstory on here soon…)

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