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I honestly cannot believe it: today is five months since I was sitting in my office and got the call from my doctor saying “you have breast cancer.” In some ways, it feels like a lifetime – I hardly remember a time when cancer wasn’t consuming my life. In other ways, I don’t know where these last five months have gone – I feel like it was just February, we were finishing the shutdown and celebrating my 38th birthday. (What a dud 38 has turned out to be – bring on 39!!!!)

But as much of a nightmare as this has all been, anyone who knows me knows that I am a firm believer that everything happens for a reason. I refuse to curl up in a ball and cry endlessly (although I let myself for a few minutes every now and then…), become useless or a burden and just accept my fate. I am not going to over-analyze this and whine ‘why me’ over and over, either. In fact, I don’t think I have to – I think now maybe I know why me…

Just as I sat down to write this, my phone rang. I was so relieved to see my friend’s name. It was only a month ago that she told me the horrific news that she’d found a lump. I refered her to my fabulous dream team at Dana-Farber and it was confirmed as breast cancer. And today she was having a lumpectomy. While I’d heard she made it through fine, I was excited to hear her voice and know it for sure. I exclaimed my relief over the news that the doctors said all went well and they believe they caught it early and it’s all gone. And she said, “It’s thanks to you. You reminding everyone to check.” And that’s it. Maybe that is why. Maybe I needed to go through this so others can catch it early enough and stop it. Words can’t express how thankful I am that she found that lump and stopped it. That makes every second of this journey worth it.

So please – do your self-checks. And tell your sisters, mothers, wives, lovers, friends, daughters, everyone, to do their checks, too. But it’s not enough. We have to stop the damn c-word completely! As some of you know, I am excited to have two opportunities to help in the collective fight against cancer:

  • Tomorrow (Tuesday, August 21) at 1:15 p.m. I will be interviewed live on the 11thAnnual WEEI / NESN Jimmy Fund Radio-Telethon – Events – The Jimmy Fund. (WEEI is Boston’s sports radio station – 93.7 FM and 850 AM and you can listen live online at www.weei.com; It may also be simulcast on TV (NESN), but that’s TBD.) They are going to interview me about my personal cancer experience, my interactions at Dana-Farber, etc. Hopefully I’ll be able to help some cancer survivors know they are not alone in their experiences and inspire some people to donate and help conquer cancer. (And hopefully I won’t embarrass myself on live radio/TV…)
  • I’m also honored that my childhood friend Heather Forbes started a team for me in the Jimmy Fund Boston Marathon Walk on September 9. I am thrilled to be feeling healthy enough to walk the last three miles with the team, so have registered. Our team is still looking for walkers (and supporters), so if you are able, please join us – there are multiple legs, you don’t have to do the whole 26.2 miles! For more information on walking or donating: Amy’s Jimmy Fund Walk Page.

Thank you: every prayer, every self-check, every step walked, every penny donated: together we really can make a difference in this fight!

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Running isn’t just good for me (and you) physically, it helps mentally, too. Phil always told me that when he has something big to think about, he goes for a run. And he’s right. Even with my music blaring in one ear (I never put both ear pods in – learned that in self-defence class – always stay aware of your surroundings), I can think more clearly and better concentrate on a run. This first run I thought about a million things, but the one that really stands out is my upcoming meeting Thursday morning at Dana-Farber.

I received a letter the other day from the Development office at Dana-Farber, wanting to thank me for my significant donation in December and to find out why I made it – what my story is. And boy, will they get a different story than they probably expect – it’s certainly evolved since I wrote that check! So as I ran, I began to think about what I will tell them.

And halfway across the Harvard Bridge (amongst the ‘Smoots’), I began to cry. I cried as I ran (thank goodness, once again, for sunglasses) and thought about telling them how devastated I’d been in mid-December when my dear school friend Sarah found out that her 10-month-old daughter has cancer – a neuroblastoma in her lower pelvic area and a nodule in her lung. It was so unfair!!!  I thought about the other people close to me who’ve been hit so hard by cancer, like my friend Kristen who lost her brother Greg after his long, brave fight with the disease. And it being close to Christmas, I thought how no one really needs anything more than health and decided to make that donation to Dana-Farber in honor of Mirany and everyone impacted by cancer. I printed out the donation cards from the website and give those to people instead of other gifts for Christmas. And then March came… I cried some more, just thinking about how I’ve gotten to know Dana-Farber more than I ever wanted to.

I am happy to share my story with them (heck, I can just give them this blog address!), my heart just breaks for Sarah, Scott and Mirany’s lives, my life, my family and friends going through this with me, all of us, and wish in this one way we were all where we were last November: blissfully ignorant of this damn thing called cancer.

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Grampa is at peace. We lost him the other night, which was absolutely what was best for him, given the circumstances. It’s a small comfort to those of us left behind, as we would prefer to cling to him here, but that’s not fair, either. So we let his body go and all keep with us the pieces of the man who helped mold each of us in different ways. For me, I will always remember the grandfather who bounced me on his knee chanting about the duckies; introduced me to my love of theater; was my first minister; spanked me, my older brother and cousins when we got into mischief; took me to the top of Mount Washington; and welcomed us at the Cape. He furrowed his brow as much as smiled, and we loved and will miss both.

I apologize to all those who’ve commented on how silent I’ve been lately. It’s really been an overwhelming two weeks – in a totally different way than the preceding ones. From Mother’s Day when Grampa had his stroke, we’ve spent at least part of every day at the hospital, luckily surrounded by family. Tara rightly pointed out that one small silver lining was the timing of all this, in that at least with this happening during this point of my recovery, I was able to be there for him and my family, which certainly helped me. (None of us ever thought we would – or wanted to – know the Longwood district and all the hospitals so well. But we’re constantly thankful to be in Boston with some of the best hospitals in the world!) Now it’s planning and preparation for his service this weekend (details here). I’m doing a write-up on him for the funeral home’s web site, but struggling: it’s the hardest thing I’ve ever written. And I am beyond touched that Ginny and the rest of the family decided to direct people to donate to Dana-Farber for breast cancer research in lieu of flowers.

At the same time as all of this was happening, I also was running across the street from Beth Israel to Dana-Farber and Brigham and Women’s for my appointments. I had my first physical therapy (PT) appointment, which both felt like progress and hurt. I’ll continue PT twice a week for the next few weeks, in addition to my exercises at home. Also in the hurting category: I had my first tissue expansion injections with the reconstructive surgeon. The four giant syringes intimidated me at first (uh, do I really want boobs that bad???), but the process was fine, not nearly as bad as I expected. (I closed my eyes, although my mom was brave and watched.) Mom warned me not to get too excited about not hurting, as they gave me numbing stuff first. And boy was she right! I am still in pain that almost rivals the original surgery – no wonder he’s spacing these injections out to every four weeks! The highlight for me (in addition to now having slightly larger mounds where my breasts used to be) is that I am tentatively cleared to go back to work on Monday, June 4 – I really can’t wait. I will just need to take time off as necessary for all the appointments/additional surgeries and for when (if – as I am still dreaming I won’t be) I am sick from the chemo, which will now begin on June 12.

Also this week, my Dad and Maggie surprised me by driving up from Tennessee (where they went after I left them in Florida). My father was close to my grandfather and wanted to be here for him, as well as for me with all of this fun cancer stuff, and to help my 100-year-old Nana with things around her house, now that she is (momentarily) willing to accept a bit of help – boy do I know where my stubbornness comes from! (As well as some of the strong, independent woman DNA, although I am lucky to have that on all sides of my family!) It is comforting to have them here – and simply always good to see them, as it was when my brothers were both here last week.

This has definitely all been a reminder on the importance of family – including your closest friends who you consider family. Nothing is more important than spending time with the ones you love. You may not always see eye-to-eye, you may have knock-down, drag-out fights, you may not always be able to stand each other. But when it matters, you’re there for each other. And hopefully in the days in between you spend time together. It doesn’t matter what you do, as long as you’re together. Some of Nick and my favorite times were sitting on the deck at the Cape, simply talking with Grampa and Ginny and whatever aunts, uncles, cousins were around. Those are moments we will always treasure, and wouldn’t trade for the world. We love you Grampa , and miss you so already.

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